1st June 2016; the process of becoming more aware

1st June 2016

My thoughts have slowed down more with the medication and I can feel myself calming helping me become more aware, whereas before I was ignorant.

This has been a horrific journey with more lows than highs.

Every morning I wake up my thoughts are racing and I try to process what’s going on.  That process is getting a lot easier.  I think I need a mood stabiliser because my mood swings have calmed, but are still affecting me and my family.

I am easily frustrated and irritated still and I feel fragile, I do not have a clue what has made me behave like that, but with help from a lot of sources, I’m beginning to get the better understanding.

At home, I am calmer and easier to be around, anxious for a lot of reasons.  I feel awkward talking to others because half the time, I’m trying not to get anxious over my communication.

My head races and my mouth can’t keep up so my words can become somewhat disorientated, leaving me and the person I am talking to, quite confused.

I hate being alone at night I become anxious as heck, checking and re-checking my windows and doors are locked up.

I’m a leader, not a follower but despite that when I was younger I used to try and be everyone else.  In fact, I spend so much time analyzing and dissecting the person, which can cause negative thought processes for the other person…..

Source of writing www.naturalempathiser.com – feature photo by  Gratisography

Other Articles in this section

  1. Trip down memory lane March – July 2016 – 08/07/2018
  2. Trip Down Memory Lane 27/02/2016 – 05/07/2018

17th June 2018; immediate thoughts after taking the Ritvo Autism Asperger Diagnostic Scale – revised (RAADS)

Source of writing www.naturalempathiser.com – feature photo by pixabay

17th June 2018

The Ritvo Autism Asperger Diagnostic Scale-revised (RAADS) my results

Just done the RAADS – can’t retake for 9.99 days as really liked words of certain questions, also had to rely on google explaining some words and meaning but got there. I now know the difference between empathy and sympathy written Sunday 19th August 2018; Looking at heaven living through hell

Simply put, empathy recognises someone else’s perspective, sympathy just the current drama. Also had to look into the word compassionate and answer honestly. I think I’ve learnt how to be compassionate but is not, my natural.

A question that really threw me was in relation to cuddles, I like a hug if I feel secure, they also make me feel safe given by the right person. I do not like it when it is just holding the person up, think it’s the pressure given in the cuddle, sure I was reading something linkable to this, the other month.

I couldn’t’ say that it wasn’t true because in a certain mood it seriously my space and I will go for the jugular if you impose on it. I do become frightened, anxious and lack serious control over emotions and bodily movements, don’t mind cuddles if wanted and by choice not forced.

Also when I was grieving my grandad, if I’m hearty crying I hate it don’t want to be touched, I’d do it in private, becoming physically and mentally drained. If their silent takes no energy at all, if I can internally hold them and ride out the storm, all is wee in the end, well so far.

Say something to me please because I’m beginning to give up on you, lyric from a song that influenced this next thought process. I never have enough time it appears, what truly is the priority, I’m guessing my clinical psychiatrist does not have the structure timed to dedicate to me I get that, her schedule is jam-packed so why don’t I use a skill that we both have in common. Writing.

I have been reading my clinical psychiatrists words from my medical records.  This has changed my focus. If I had access before I could have saved a lot of damage to my psychological health and not just my own, my children’s, partner and families.

Reading her words is the very reason why I’m writing my life story, why I am doing these Autistic tests, Why I am going to attempt a timeline then do what I do best, gather the information analyse and look at numerous perspectives, draw on a conclusion.

By doing this I hope to give my Clinical psychiatrist  some insight to allow her to be able to do her job, by being patient I will always get there, and as far as I’m aware from those that do stick, it is well worth the wait, let’s hope it’s true in this case

I had to find out what an “intimate relationship” was as there are so many dimensions and perspectives to the word intimate.  The article for this is Tuesday 3rd July 2018: When you put your trust in someone or something, in an intimate way

You feel sympathy when you feel sorry for someone, it is usually when something negative or bad has happened, that’s when you, sympathise with someone. It is a sense of sadness regarding the other’s unfortunate situation, eliciting unpleasant, uncomfortable feelings and an understanding of their struggle.

When you show empathy or empathise with someone or something you are relating to someone, in a way that you feel what they feel. The challenge is simulating it, a likeness within oneself whether you intentionally or naturally do it.

I hate the word pity and have always linked it with Sympathy as that’s the emotion showcased in the beholder of the emotions eyes.

Whenever my story is truly told I see pity in some, admiration and understanding in others. Just had a little fantasy thought I will share, sympathy could be linked to fiction, a drama; empathy could be linked to truth, looking for reality, not fantasy.

This is where I see a pattern, a chameleon that is me. I’ve spent so many years learning it in all walks of life to some degree, feeling rejected that I become the other or detach, differential bipolar type? Personality disorders? Autism? ADHD?

Whether you intentionally, taught or naturally do this is a different story but one thing I’m sure we can all agree…..

Humanity would be better off if we all took a little time, improving our own empathetic capabilities as it is a very usefully helpful, effectively practical skill.  Just be careful not to become to empathetic, losing yourself in the process

I really do walk in the shoes of those who wish, feel what they feel, think how they think, become the weakness to figure out the solution to strengthen, to fix, to learn, for deeper understanding, insight, and meaning.

Thus creating dynamics and dimension, becoming aware even when I don’t want to. I’m not saying this is what everyone should do, this is what I naturally do now that requires balancing.  Seems I go from one extreme to another, like a leaper, the misunderstood.

28th April 2018; reflecting back when a bereavement the day before, shut down my ability to communicate

Source of writing www.naturalempathiser.com – feature photo by pixabay

Reflection on 28th April 2018

My grandad passed the day before on a Friday so unexpected, leaving a vulnerable disabled Nana behind.  My go-to guy (CPN) was off on leave and I was exhausted from all the tried and failed attempts communicating what was going on, with people I did not know, or who didn’t know me.

The problem was I was never quite getting the words right, clearly, my carer wasn’t either as the cycle of totally confusing the parties involved in the process of verbal communication, continued. (I know this because I have seen their words in my medical records, and the memory of these exchanges are forever scorned)

All I was requesting was my full script of sleeping pills that were put on weekly dispense weeks prior due to confusion from all departments, but mostly lack of communication between the individuals involved, add the fact my GP, CPN, and clinical psychiatrist were on leave or unreachable

The ADHD meds that were supposed to be monitored but were not wasn’t my issue, I know my internal chemical balances well enough to manipulate, monitor or judge, as I say I am not new to this system or being me!!!

What caused the damage to my psychological health making the next coming weeks harder than they could have been with help from those who could, was trying to get a hold of the only person that could have fixed or prevented this earlier in April.

The knock on effects had me shutting down and losing control, the reason I was in seeing a stand-in for my clinical psychiatrist in the first place previously because the side effects were problematic.

Back to the point and what I am reflecting on, I required these simple little sleeping pills that the chemist was only authorised to give 7, and I would have to come back to get the next required doses every week, for the next 3 weeks, like a beggar or idiot, no thank you.  I was traveling over 100 miles for unknown time-scales as a funeral and wedding were being organised 2 days apart, it wasn’t possible. (10th and 12th May 2018.)

I really did not need this complication on this day, that was not my error to fix, that only got fixed at the end of August 2018.  This should have been really simple but yet…???

I got my 28 lorazepam no problem though, the ones I didn’t even need the most. I just needed aid to sleep at night so that lack of sleep was not added on top of the obvious emotions one goes through when they lose someone they were deeply attached to, for the first time. Never mind the neurological and psychological disabilities coincided with a bereavement!!

Of all the pills I have been prescribed this should not have been the one that created the problem. When my disability involves communication, but do you think any of the professionals communicate???

They go by what is written on my medical records, which are a mess and full of insight and bull crap, also it should be clear verbally expressing my communication, is my disability.  Hence the reason I’m publicly putting my words out there, for yourself and others to read, allowing my ‘voice’ to be ‘heard’.

One special woman tried really hard to get the help me and my family should be entitled to and needed, although the response from my clinical psychiatrist was shockingly mind-blowing, still can’t get my head around it.

Her opinion coming from the mouth of another was she could not help me???? To be a fly on the wall on that conversation.  This inspired research into a clinical psychiatrist job title, role, and responsibilities on the NHS.

I can now say without a shadow of a doubt, so trust me when I say this, you could have helped me…. you chose not to for reasons known to yourself, that one day I hope you explain to me regardless if you read my words as I have yours, I will ask.

This lady who delivered my clinical psychiatrist words is a colleague of my CPN/used to be crisis nurse, managed to help in a way that mattered and made a positive difference, maybe not what was needed or could have been done, but the fact she was empathetic and tried was enough.

Therefore she gave me hope in humanity if we want to take it to the deepest routable problem, and in those trying to help. I need more than a place that’s safe to switch off, but must come up with an alternative, because the one person able to help, says she can’t…..

My constant daily problem is living in a place that sucks the life out of me, a constant daily battle to find the teeniest bit of space to gather my thoughts, living conditions are shockingly challenging as 2, who shouldn’t even be in the same room, grow together (no labels or stigmas).

It has been 2 and a half years I have waited for this change but nothing, all these peoples spare scraps of time in a system that is crippled.  I became to empathetic now I welcome a shutdown, all the meds cost a fortune just to help make it easier to stay in these trapping conditions.

Be a lot cheaper, beneficial, more productive and easily fixed with a solution of better living conditions.  Every profession is aware my personal circumstances are the main contributor that I’m powerless to change, disabling me time and time again, but those who are paid to do just that, can’t in my case.

Unfortunately, the people aiding me know they have the power, resources, and influences to change this, but claim they are unable to. I keep getting told to have patience, people are helping trying to resolve this, (nearly 1000 days of it, still no change)

My life has become the living breathing version of ground hog day and it is a crippling mode for me and my family to be stuck on, the reason I’ve been a runner all my days (take what ever meaning you want from that word ‘runner’.

When I try to rectify calmly, communicate effectively or go in all guns blazing to a problem easily fixed, I appear aggressive, of course, I am it is an emotion linkable to the circumstances I am experiencing, for a really, really, really long, long, long time…..

When a problem is so complex, it is easy and quite common to back off from it, especially if it makes you anxious or uneasy.  This is just your mind and body thinking that it needs to protect one’s self, (whether or not there is actually any danger can become obsolete, the what if’s can be enough to create panic). I fight this personally and brutally… regaining control and composure

Personally, I will just find an alternative route regardless, especially if it doesn’t make sense or completely contradicts itself, its how I stay breathing.  My objective and focus may end up with slight alterations to stay up keeping with the times, but the foundations remain the same.

It has been just under 20 years professionals have been involved inconsistently………. but I’ve been a constant for my mental health team since 2016 even when they claimed they could not or I did not need support, so disappointment is not new to me.

Maybe one day you will get it right, a starting point would be communicating between the departments, I’m the patient and I do not get paid to be the messenger, its soul destroying.

I continue this journey for my dependants, no way will I allow them to walk the steps I did.  Also, a disability is not an excuse to be an idiot, admit when you are one because I have studied, lived and breathed it since 12 to the point I excel at it, alongside being disabled, the difference is massive

Do not allow your disability to define you, you define it. Learn, manage or overcome what you are able by yourself, or if you are fortunate enough to have the help of another or others, it can speed up the process. 🙂

Trip down memory lane March – July 2016 – 08/07/2018

“Every action good or bad, has a repercussion that impacts something or someone, a chain reaction negative or positive.”

How does one begin telling their story, ultimate question that has been continuously on a never-ending loop in my head, forcing me to a decision? My story is a complex headache…. Not my words, the words of one professional opinion some years ago. I started writing my version of my bible when I was 28 years old, so I think I should start by sharing one of the first full consistent pieces of writing I was able to do, when I lost the ability to communicate verbally and written.  This was one of the most scariest moments in my life and my families to date, followed by a more recent one 2 years later.  I have also included a piece of writing after an appointment with a clinical psychiatrist,

My words are brutally  honest at times as things only go wrong when I mince them.  They are just my perspectives and insights into a world, at that moment. A world that becomes more confusing and complicated every day, what’s acceptable today may not be tomorrow, and what once was acceptable and learnt may now, not be. I struggle every day, fighting like everyone else to breathe, my journey just has more obstacles shone on in a different light, reflected back to you in the words I only know. Some people can do this naturally, a skill I admire and wish I could hurry and learn.

Sometimes my efforts feel pointless, then those I’m attached remind me I’m a survivor, just like you. Take one of my favourites I learnt through a course I studied, taken from morgens metaphors (not had the privilege delving into his story yet), the be like a living organism metaphor, which in essence means constantly evolving to the change around you. Not just relevant to business but everyday life for the entire human race in a society encouraging difference, diversity and dynamics you need to be open and susceptible to change

Back in Spring 2016 a lot of events contributed to one of the most traumatic episodes of my life to date, a major contributor to the already stacking up PTSD (post-traumatic stress disorder) traits, until I began learning a lot about many varied things I once was oblivious to. The difficulty in learning how to manipulate myself to handle the changes that seem to occur internally, an on-going journey of discoveries, is a detrimentally challenging one, at times.

Whatever happened in 2016 was an extreme vortex of emotions, a meltdown of all meltdowns where all levels of communication were unattainable, so I gave up even trying at points welcoming the black hole because it was easier than my reality. Whenever I did try and communicate it was never precipitated or received in the way it was intended, becoming pointless, when I did communicate everything was magnified worse in extreme ways. The loss in control was triggered by events well and truly out of one’s control, there is truth in the saying you can’t run from your past.

After an intensely surreal experience with a clinical psychiatrist, I was asked to keep a journal. I explained, in probably the worst verbal dialect, my sensory senses were through the roof, I had lost the ability to write and I truly had at the time, but because of this request I began writing and drawing again, if you can call it that. It was chaotic but understandable to me, titled ‘my bible’ to make it symbolically significant to me, started March 2016.

As I’m reflecting on these moments I’m going to write about them, as my bible was a go to whenever the thoughts in my head became too much and needed an out let, almost like a personal religion that brought comfort and hope. I was that far in the depths of my black hole, not just skating along the circumference, that too many times my body nearly gave up, mind, body and soul were not one. I think the clinical psychiatrist glanced at it when I took it in months late, her comments were along the lines of ‘good reflection, as tangled as my present’, and closed the book. That is the only time she set eyes on it, no one else appeared to be interested in the words written

I began writing in Spring 2016, quite symbolic, time of growth, new life, evolving with good old mother nature, a time of year the world becomes brighter and new life begins, another looped cycle of life. Personally, my favourite season is Autumn, but writing seems at its best and most reflective and useful in spring. Each diary entry reflection will have the date it was done and follow that pattern, so my blogs will be the dates I reflected on the writings. There’s a quote from a piece of writing that I once wrote that I want you to remember as you read the insights given into my life.

‘How a person interprets words depends on many factors to name but a few…. Their natural and unnatural environment, circumstances on which its heard, the emotional meaning, or message portrayed in projecting the word, may it be tone, style, word choices, body language, personal circumstances, past experiences, current knowledge…… The list can go on and on, but the point is words are pointless if they confuse, misguide, hurt, destroy……if you don’t understand, if you don’t give your full attention and truly listen to what’s been said, to imply and interpret the words heard in a way that is not meant……then how can you understand, how can anyone help…. Sum it up you REBEL or OBEY against a fight that will never be eliminated just changed from minority to majority is awareness vs Ignorance.’

What I hope to achieve is help, for all individuals needing it, and together we can gain better insight into individuality. By understanding and preventing stigmas, that these labels are in no way concrete they are a way to generalised through a lot of research, time, and experience. It is a way to place information into categories and sub categories that are easier and easier to understand and communicate to all levels of society.  This first week of July 2016 entries seem to be reflecting on the entries written so far, so I’m going to include them here in the order and date they were written.

My diary entries are to follow, 3 are about the sections named above as I reflect over what has been written into them in the months leading up to the entries.  I thought I would also include a Diary entry from March 2016 and an entry written after a psychiatrists appointment. My diary entries are to follow, 3 are about the sections named above as I reflect over what has been written into them in the months leading up to the entries.  I thought I would also include a Diary entry from March 2016 and an entry written after a psychiatrists appointment.

23/03/2016 An attempt at writing again

10:37am – 11:15am

Concentration is border lining on impossible now.  Quetiapine in one sense has helped but it’s like it’s blocking half my brain and is pulling me further and further into darkness.  I feel so low and just want to cry my heart out.  I’m losing hope, every day I must be conscious with my word choices and actions but right now my scales are so unbalanced, body, brain and mouth just won’t work together.  This is the first time in months I have been able to put pen to paper.  I have battled more than half my life with this ‘illness’ but my old coping mechanisms have no relevance in my life just now.  If I lose concentration for just 1 second, my train of thought just disappears and I’m unable to remember what was happening.  I have not felt this out of control since I was 11-12ish when I took my over dose, my mums eyes will always haunt me.  The difference this time is I am an adult and I have managed to raise 2 amazing children and I will never commit suicide.  I am not that selfish or cowardly (words are harsh but necessary at the time) as I once was in my deluded narrow outlook on life or flip that when I gave up on humanity.  I try my 100% best everyday just to co-exist and I’m sick and tired of it.  Mental health has changed so much but not nearly enough.  I have never been an open book, learnt that at a young age with a punch in the face, or simply allowing others their own perception whilst with-holding mine (was easier that way).  So, since the age of 8 I have created masks for every dimension of this ‘illness’ and blocked my traumas.  But there are so many triggers now.  Nobodies wiped my arse for me since I was 12, I was viciously bullied or misunderstood, creating problem after problem not understanding the consequences of my actions. My behaviour was so out of control, I’d come home it was like being interrogated.  Nobody has ever been able to understand so I started running away and then my parents were put between a rock and a hard place, and I ended up in the system and even they didn’t help just a whole new bunch of traumatic events.  I spent most of my time living on the streets, up or under trees, cornfields etc. Help was never available in any way that was of use, and I just became so numb and that is exactly how I am starting to feel again.  All I do is survive I want to start living again.  I’m naturally a reflective learner but I can feel myself putting my walls up.  All the wrong meds this last year has put all my scars + pain + trauma out in the open this stops now

PLAN

Take my mood stabiliser despite my fears

Try to stay in my present and take one day at a time

Accept the fact now I’m not taking very good care of myself

12/04/2016 Personality and ‘my bible’ explained

I’m going to start with one-word Personality which in turn creates a character. Is it the end or the start of a new thought process, beginning of a new sentence? Or the end of the previous? Well in this case the final full stop at the end of this sentence indicates a temporary break until I ponder over the words PERSONALITY

A personality is a person’s individuality and quirky character ,that defines the person’s identity therefore defining their personality. By altering the thought process, I have come to an understanding. I started with one-word personality which is a bold word which in favour should have an ending which for me, is ERASED

What I did today was get up, get dressed, went shopping and came home. After a meal, i wrote in this book with a new pen and some new paper, now let’s see if I can work out how we clean up my messy tangled Personality, with (A) start + (B) Tangle = (C) End / (A) past (b) present = (C) future

This was the structure to the writings placed inside my ‘bible’

  • My green section of my bible – Black and white (logical)
  • Pink section – Black/White/Grey (Summary)
  • The turquoise section – Black (Forma) (data) (Tasks)
  • Blue section – Multi coloured (tangle)

 

4/07/2016 Pink section reflection so far

Yet again I seem to be at a loss for words. I have started with this section because it is one of the easiest. In this section it is obvious my moods are reflected in my writing. There is a lot of spelling mistakes, Grammar, different writing and wrong words but oh my that was hard. I told my Crisis Nurse once…. Sorry lost my thought process. Reading through, oh wait I remember what I was thinking. I told my Crisis nurse I always have a blind spot, where I’m not aware and was quite surprised at the things I’d wrote, that I have put to the back of my mind. So much has gone on but the best thing I have ever done was forcing myself to write and get back something that is my safety blanket. I thought I was writing for the sake of it, couldn’t be further from the truth. A lot of what Is written here are things that I was not capable of communicating for whatever reason and probably might never be. But to read it back has made me feel a sense of pride in myself and my family for being able to handle all that has happened. It was like therapy in a sense but was always so scared to read. This section is mild, the blue is the worst so easing myself into that one. I was in a really bad place and I’m lucky I’m alive yet again, but how many times can you cheat death, I don’t know and I don’t want to know. We’ve all came along way, my other half, Welfare and Housing officers, Crisis/CPN, Clinical psychiatrist, GP and friends have all helped to get me out of the dangerous, self-destructive place I was in. I will always be grateful and thankful for all their help and I’m glad I get to read and reflect, give myself time to pause on everything that has happened

05/07/2016 Green Section reflections so far

From reading this section, I can see more detail has been put. At the start of each section there was a labelling system of writing, but as things spiralled more and more out of control, I just started writing anywhere. Some bits are quite unsettling to read because my head was in a scary place, but writing about them was a brilliant idea, as reading through these has given me a clearer perception. I find it strange that my writing even reflects what is going on inside my head. The weight on my shoulders doesn’t feel so heavy. I have had a hard time trying to get better, but my moods are still quite uncontrolled. I take 600mg quetiapine a day, divided in to 3x daily to slow my brain down, 3 of what I call pixy Trixie’s to try handle the side effects from the quetiapine and 100mg Lamotrigine a day plus 7.5mg zopiclone to help with sleep. I rely a lot on meds at the moment just to live in my circumstances, I know how reliant I am on them because if I miss a dose my head just goes off on one. Can also tell by the way I talk, and act becomes apparent, others notice this and make me aware of this, so I take them. Seen my last bit of writing saying I burned down my first house but it was unfinished, so I will elaborate, I set it on fire so that I didn’t have to live there no more, I was young lost and confused. I’m surprised by my writing and how much I have been able to write. I have started a separate book for writing about my past, and only my past inside this book, written in a general journal where my writing requires no restrictions. The last entry in this section is dated May 20th 2016, so haven’t been writing in this section

04/07/2016 Blue Section reflections part 1

Oh my, haven’t even begun reading what’s still attached in this book. I remember ripping out a few pages I’d wrote a little while ago. These words were my first attempt at writings at the start  It really is like the ramblings of a crazy person, my heads all over the bloody place. Confused mostly of communication, trying to get the right words to explain because I was saying all the wrong words and confusing everyone, these writings are from the 15th April, 2 weeks after hospital, in fact the first is dated 14th April but things had already started going unbalanced back in the year my son was born. When you read this and in my case, it just takes me back to an extremely embarrassing cringe stage which is upsetting and unsettling to read about. Just had to put this point down as was my thoughts on reading those loose bits of paper. The tangle in my brain where I have managed to draw and word on paper some of the stuff that was tangled but wow I really don’t know what else to say, just wow……

05/07/2016 Blue section reflections so far part 2

Just finished reading the last bits of the blue section. Clearly my moods have been more negative than positive. I need to remember where I was and where I am now. I have managed to reach a level of stability in some respects when it comes to my emotions. Reading this has put me in a place where even I must be proud of the fact, that together with my family, have managed to pull me out of one of the darkest and most lost places I have ever seen. Today is my appointment with my clinical psychiatrist and I’m never sure what  to expect, because you only get a small amount of time with her then it’s over, months before you get to see her again.

06/07/2016 reflections after psychiatrist appointment

I had a better appointment today with my clinical psychiatrist, but it was intense. I struggled communicating at some points but overall it was a lot better. My lamotrigine I’ve learnt is a mood stabiliser. Since taking that it really helped prevent me from hitting the lows I was in, that could last for months. Before November which is my next appointment with my clinical psychiatrist I want to of filled this book, but I also want to finish the book I started where I only write about my past. Was glad to see that my writing was starting to improve, was noticeable when I began to read it. I know I am in a better place than I was before, and I really like my clinical psychiatrists because she is a thorough person when looking into what my condition is. I’m going to work on relaxing and reducing my stress levels. My past may be messy and messed up, but my present has barely any issues, that’s probably why my struggles and behaviours became more apparent, they were out of my realm of the ‘norm’. The level of quetiapine I must take is high, I’m wondering if I should begin reducing them down in the future when my body has adjusted, to the increase in the lamotrigine. My clinical psychiatrist hopefully, will now know roughly how or what the right way is to help me recover from everything that has happened. Trying to find positives about myself is something that I have always struggled with. I live a quiet life, the only issues I seem to have is from an ex that is not even mine. I could not predict, understand or control the actions of others or the outcome, because it was that insane with no logical or rationality, full of nothing but emotions. It was a really scary place so how I reacted was affected and influenced by my moods and having to stop all the meds I was taking. My anxiety was extremely high, to be honest I probably should have admitted myself into hospital the year before. I don’t blame anyone for my actions I take responsibility. With the help of CMHT (community mental health team) and the people closest to me I’m hoping I can bring back my confidence and like myself. People always seem to initially attract towards me because I am different, but eventually they will back off. I have great insight in people, but nobody likes their flaws out in the open. I have a bad habit of analysing people and trying to figure out why they are the way that they are. These types of people are not a constant and cannot usually handle constructive or a criticism of any type. I can find that hard myself especially when I was really depressed, in a way I probably use them as they are the type of people that want company from everyone and it’s quite clear they are never going to change their ways for the better. Right now, is quite challenging because I have a lot of past issues and traumas to work on. I can feel myself constantly putting up walls but at the same time more are getting knocked down. This is not going to be an easy journey but through all this I will have a better quality of life possibly, and that is worth its weight in gold, baby steps.

Writing is extremely useful as once you read it back it takes you through a period in your life that you can reflect on and get a better perspective of what’s been going on. I’ve been thinking a lot about my conversation with my clinical psychiatrist. It was so intense, and my brain raced a lot so got a little more tangled with my communication. I feel sluggish today, not too much energy but that’s just a little off, and by saying that I mean different, not myself, at times I question who I am, but I know I’m still here

A lot of issue highlighted are still the same and what I was told could help has never happened, yet again holds merit to that saying ‘don’t believe everything you hear or see.’  I’m going to end here and start this off another day from more entries from this particular journal.  Thanks for reading.

A Personal SOS call, to save one’s soul

07 July 2018

It was a warm sunny day, one where I could socialise with no small talk or pretences, debateable and comical at the same time.  During one of the more comical sides to this good hearty conversation, my friend was telling me what type of animal mine and those dearest were in relation to our months of birth.  I came out a fish who is someone that doesn’t have an opinion, we all laughed.  Initial reaction doesn’t fit at all but later after some reflection, I don’t ever have an opinion as such, just a point of view or understanding giving the situation or events taking place, constantly changing to fit an ever changing external and internal environment.

I do not belong to any group or what one would consider social ‘norms’ but I’m okay with that.  The more I open to the ones that do understand me, the more benefits, but I do wonder if those supposed to help will ever be in touch.  Appointments I never receive letters for, due to no fault of my own but the individuals.  I miss appointments, terrible for it, especially if there is no immediate relevance it slips from my thoughts which myself and those attached are aware of.  I’m told it is a part of my disability and there are groups, courses and help that can aid me with coping mechanisms (where are they?? Started this journey Spring 2016.)

I take responsibility and apologise to all relevant, but I’m not paid to help myself, if I could I would.  What I mean by that is, if I had the support or help that I’m told I am entitled to, I wouldn’t miss appointments. Also, if those who are designated and specialised to help, can’t even get the admin side done right what am I supposed to do? I need these little slithers of time handed to me like scraps, not with my GP, he does all he can, but with those specialised to help. I don’t have crystal balls therefore, I lack the ability to know you have made an appointment with me, if in fact you do not let me know verbally or written how am I supposed to attend this, 1hr a fortnight, or the most important which I get no more than I can count on 1 hand, a year.

There are many reasons to why I write, but how or what I am writing about can be influenced or depended on, by anything and everything relevant to the cause. The purpose and reasoning behind this piece of writing, expressed through these words, in this context, is to reach out to those able and willing to help, who have the capabilities, social standing and authority, with the education, experience and knowledge to look in more depth, at this individual who keeps confusing 30 years on.

I am an adult and have been for some time, that makes this harder.  The systems over the past 2 decades have done more harm and created more confusion, that I am only just beginning to scratch the surface of being able to understand.  I am warily empathetic and understanding to the notion that although this wasn’t their intention, that they were only trying to help, you didn’t, because you were too busy trying to fit me into boxes, you’re missing the individual.

These criteria’s and boxes needing ticked are just guidelines and in no way set in stone.  So why do the same patterns that fail keep happening clearly time and time again, if this was not the case through experience and first-hand dealings, I wouldn’t be writing this particular blog.  This cycle needs to end or be shaken up because I don’t care what label fits, so long as I can start living instead of barely existing at times, because the real tangible pain resonating in my brain, is from that metaphorical wall I keep running head on into.  How many times can I keep doing that before irreversible damage might be done, doesn’t bare thinking about. 

Unfortunately, I don’t have the funds or social class to privately finance that, or I would probably have had results and answers or understanding many years ago.  I’m only speculating because I have the brain and physical abilities to not be in the poverty stricken, from however you choose to look at them words, but I am.  Most of the damage needing repaired could have been avoided if one was to just look at the individual and take the time, not try to fit the individual into the disabling system when she’s already disabled enough.  I have started this, to voice my own alongside the echo of other people’s voices I have heard.  I want to try and communicate my inner thoughts, feelings and understanding transpired into written words, made by men and women alike, for more in depth understanding and communication with one another

Writing is therapeutic to me, and I have done it for so long for many vast and varied reasons, both personal and not.  What I am hoping to achieve by publishing and putting both my personal and generalised writing out there, is simply put, a platform for one’s self and others to express their hopes, dreams, failings, and discoveries relevant to my purpose and their own.  I’m just communicating in my best form, to be able to get my message across, hopefully with a response, to what I or others can aspire to be, past and present determining the future, as practical and mental teachings through learning continue their cycle.

I use my memory plus the knowledge and information gathered through all aspects available at the time, to conclude or come to an understanding or reasoning, given the facts and information available or sought out at that past moment.  I’m always watching and observing everything around me, some never written, or verbally voiced, just known to me myself and I, with regards to my perceptions and takings.  I’ve always been a people watcher, which may sound a little creepy but that is not the case, just paying heed.  What I mean by that is I’m always observing my surroundings, noises, vibrations, smells, energy etcetera.

I use the memories available and relevant to the event or situation in question, plus the knowledge and information gathered through all aspects of life known and familiar to me.  I then conclude given the facts and information available to me at that, moment in time to an answer with at least some understanding or a direction to find that useful information.  As I have said I’m always watching and observing everything around me, it’s something I can’t help.  I became an extreme people watcher during traumatic years in my early teens, but I suppose I always have been.  From there, I learn from what I have saw, felt, heard, learnt, or experienced, good or bad.

I like seeing the familiar in a new way, raising the level of perception above ‘normal’, making myself aware of my own self, in the fullest way possible which can contradict with a lot of personalities at times, where this is not their ‘norm’.  Take these very bold outlined words, then start adding some colouring to them, it could produce what follows. Evil, in a colloquial sense (which is just everyday speech), is the opposite of good. Branching and stemming from them words could produce a word more precise but commonly a religionists-associated word, which is “wickedness.”  As defined in philosophy, it is the name to describe the personality and instinct of individuals, which selfishly but often necessarily, feel the need to defend their personal boundaries against foreseen and unforeseen attack.

I suppose the birth of the natural empathiser is my own brand of realism, put out there for others to see if they so choose.  I want to give a little insight into the type of personal writer I am and aim to be through professional  and personal experience, and hopefully express my purpose in publishing my writing.  The purpose and intention of this blog is both personal and completely relevant to the society we live in.  My intention and way of life is to manipulate and exploit everyday knowledge, memories, and words, to a level of perception above the ‘norm’ to become aware of my own world, and others in the fullest way possible to one’s self.

Natural empathiser for me is a communication platform to those who may be able to assist, in some way on this quest for answers.  The reason I am doing it this way is primarily, because I don’t fancy changing my degree plans to accommodate, an approximate 10-year journey becoming a doctor or another pathway getting a PhD in Science, to be able to study and understand the human brain, in a more in-depth scale.  If I’m honest I really considered it, thanks to my university I seen a little sense because I don’t have to.  Many have already done this who could help if they so choose to spare me those precious moments of time.  Allowing me access to their knowledge and understandings of neurology (the brain) and psychology (mind and behaviour) more specifically, helping me solve the riddle that is me, and why I have been described the human Rubik’s cube that hasn’t been solved yet?

Someone out there has the answer, I’m following thesis, theory, hypothesis, fact, reason, well that is after sifting through the endless amount of pointless, irrelevant, misguidedly confusing jargon. It’s like a needle in a haystack unless you have a clear path, as I’m beginning to believe, by seeing the mechanisms and clockwork of my brain, visually.  This could help see the bigger picture so to speak, or be just another piece, regardless it will give insights and answers I never had before, where hypothetically and statistically, it is failing, or so it appears through the knowledge I have gathered and the way I am still treated.

I considered changing my degree plan to focus on neurology, to gain access to knowledge regarding brains, mine more specifically.  Do you know how long that would take me, how much time I do not have to spare for that especially when there are people with 10, 20, 30, 40 years’ experience already there.

May you be a specialist in neurology or psychology, as I need both to see the bigger picture.  If you are reading this and can help then this blog is targeted at yourself because to me you are unicorns, I have only ever heard, read, or spoken about yourselves, but never had the privilege in 30 years, of meeting that person who thinks outside of these boxes, and is interested in my individual, with the ability to truly appreciate it. Not necessarily true in some senses though, I have met a GP and a clinical psychiatrist meeting this description plus many others, but unfortunately their time is not a resource easily attainable, in the time scales necessary to this individual.

Sometimes help can be more disabling than enabling because it is too big a web of generalisation, too easy to become tangled and stuck. If an individual does not fit within the present order or required mental criteria, that we are not supposed to fit into exactly, what are they to do?  This led me to the question of how you help people suffering unnecessarily, because they cannot gain access to the help required for a multitude of reasons.  If you have a story, idea, solution or just a place where you can be amongst like-minded people, or a question you would like me to investigate, then please post or get in touch, I aim to respond within 24/48hrs, but responses should be much quicker. 

My Website is about voicing mine and others current predicaments, or stories needing to be voiced.  If you have a story you would like me to voice for whatever reason, you are unable to yourself, then hopefully I can help you with that, if you get in touch naturalempathiser@gmail.com.  To read my blogs/writing and gain some insight into who the natural empathiser is, and what the hopes and purpose of these group/pages/social media are take a look at my website in the making at; www.naturalempathiser.com, before contributing to the groups that follow. 

I’m trying to create a community of insight and understandings to clear up confusions where possible.  I read too many blogs repeating the mistakes I once appeared to do by blaming the people following the systems.  Follow or join the community I hope grows through time and understanding.  I am new to this and delving into a lot of unfamiliar territory but I’m a fast learner, so pages and groups have only been set up several days, but will hopefully be completely up and running within the next few weeks. 

 Follow or join the beginnings of;

www.facebook.com/naturalempathisers

www.twitter.com/nempathiser

www.linkedin.com/in/natural-empathiser-b044a2166

www.pinterest.co.uk/naturalempathiser

 

Trip Down Memory Lane 27/02/2016 – 05/07/2018

A Reflection of the day dated 27/02/2016, on current day dated 05/07/2018

Join me on my trip of self-discovery and hopefully, having it confirmed one way or another whether I am Autistic, Bipolar Type 2, ADHD (current diagnosis) or a combination of all 3 from the people that have the knowledge, understanding and experience to look at the individual, and have the time to help me. 

I am a mature female, in a relationship and a mother, but I am just an individual, someone looking for answers and help that shouldn’t be this difficult to access, but unfortunately it is.  The end goal is that from confirmations more acute and relevant to one’s-self, help and doors will open to allow me to learn new ways and techniques to combat these disabilities, as alone it’s getting to hard and in some ways, it is preventing me from moving on, or living the life I possibly could.  This desire for isolation and space is getting stronger and stronger, but no way of having it.

I see so many blogs and think that used to be me, before I learned this or that, but there is still so much I am ignorant to, that impacts my day to day living.  Maybe by showing where I once was, to where I am now, it might allow for broader insights and understanding.  Hopefully without imposing too much strain on my own mental health and wellbeing in my present. It has been challenging for people to help because I am so closed off, but I am trying to be more open, but I am selective in that because I have taken many a burn, theoretically speaking through systems, procedures and people trying to help.  

I suppose this is the journey delving into my most traumatic and invigorating experiences to date, learnings, and misunderstandings still to be, or already cleared up.  After the original entry Grammarly corrected, there will be a little personal writing in my present.  This is a walk down my memory lane, the words will be what they were at the time.

Please remember, these are my personal diary entries at the time they were thought and believe you me, in a lot of ways my opinions and attitudes have changed for the better.  Also, I may have been highly medicated on some of the craziest combinations that altered my perceptions and proceptions in varied ways.

Please read from an empathetic view point and walk in my shoes, figuratively speaking, for the time it takes reading my words, because this is, was, and will continue to be, my life, so let’s see what my refection shows. 

Saturday 27th February 2016

Wow words so effective depending on the persons perception at the time of hearing.  The ‘Ability’ (Disability) depending on the persons personal or ignorant view point or experiences.

I have an

·         Ability

·         Disability

·         Order

·         Disorder

Doesn’t matter how many of either I have because I am so self-awakeningly ‘Wild’ and self-tamed.  Let’s try the shit sandwich delicate flowers approach. I am already full of mindfulness and one with my natural environment.  I have fought every disability I have, every disorder I have through watching humanity and society.  Sometimes I truly believe I am poison but let’s look at the reality with a little riddle ‘love me right and you will be all right…… hurt me and I’ll hurt you by exploiting your disorders, disabilities, ignorance or selfishness.

I never do anything half-heartedly, I give you my best but lose hope I will drown with you, but I will always, regardless, float even if I must watch or make the person drown so I can swim away.  I am unique there is no label for me, take away my abilities, learn my disabilities becomes so obvious.

I use my resources till they have nothing useful for me to survive no more.  Time for a switch off but something I would love to learn is, where does someone think they have the right to be deluded and ignorant, to think just because you’ve took away somethings freedom and offered it something meaningless, does not mean you can own, possess, or control it.  They’ll just play your game till it is time to break free.  I achieved a lot and now my bubbles burst, and my walls broke, the waters putting out my flame, but my brains fire and I AM the ignition. 

So, if I am free I can never be put out, but it is time to tame me differently.  Just another battle in my war I will never win, but for some reason I am still breathing, and until I take my last breath of life and give it back to my natural environment, I will NEVER stop FIGHTING because I am a survivor of so much pain, but I have dealt with it alone.

I do not talk because if I do I watch the spark go out in that person’s eyes.  So, define disability to me ‘HOPELESS’ no ‘IGNORANCE’ to me is a disability, hope you can find anywhere.  My disorders are my weak watery heart, fiery brain, and a body and ability to ignite or put out anyone’s flame.  Society and people taught me how to do that PAIN, NEGECT, IGNORANCE, UNRESOURCEFUL, HOPELESS, = WEAKNESS vs STRENGTH.

 

Thursday 5th July 2018

Have to say my opinions have not really changed since writing these words if looked at black and white, but there has been some light shone on these words over the years.  New experiences, understandings and just personal growth have all gave those words more shape.  I still have difficulty with words because people’s eyes, body language, energies and words do not always match, so hard to interpret what the person is trying or not trying, to communicate.  Also, I say words so wrong sometimes verbally and written. which can confuse the heck out of all parties involved if you do not know me, if I’m unprepared or uncomfortable. 

To many people, myself included, are fighting systems because they cause more problems.  Since I am not the only person voicing this maybe we should start focusing on that more.  A starting point would be making them more adaptable, understood, and reachable within realistic timescales.

Something I am beginning to become more aware of and question is, if it Depends where oneself fits on the pecking order, which determines how much insight and knowledge they have, or appear to have.  I wonder what my medical records say about this date or the surrounding dates.  After I have put all my written words to digital and posted enough of the past, that I am aware of.  That will be the next step, adding what other perspectives have been on the days or months I am voicing.

When reading this I concluded what I have wrote some years ago, that it is a one track minded, somewhat ignorant view point, but still accurate in a lot of ways.  What I mean by being so self-aware is that it is impossible to be aware of everything at one time. How we broaden that is down to the individual, so I choose to reflect, whether naturally or forced is always going to be debateable. This is something I have always done for as long as I can remember.  Also, I seem to always be aware of things others are not, but at the same time being blind to others, as those considerate and thoughtful enough to have pointed out to me, in a non-judgemental or prejudice way, have said.

The problem doesn’t seem to be feeling emotions because there I do not believe I have a problem, i can just appear as detached at times. That Is because internally the emotions are starting to overwhelm me somewhat as if I’m drowning with you, but to save myself I must figure out the problem, fix it or break away, if what I’m attached to is the problem. Expressing and understanding, knowing what to do with these emotions seems to be the problem, I appear to lack the abilities in this department

When I talk about using my resources, we all do it, but people are my most valuable as I learn at personal record-breaking speed, through them.  I once got asked what my view on friendships and relationships are.  It was asked in an intense, formal, fish bowl environment, I eventually summed it to the one word I always land on after excessive babbling, that word was ‘pointless’.  Because you can become a point-less or a point-more with any relationship.  Sometimes we give too much of ourselves to others but get nothing but problems back in return.  It’s quite hard finding people that understand and relate to me, so they can become pointless because they end.  I have a few strong friendships and relationships where I do not have to be so self-conscious or have the feeling I am walking on egg shells.

 

In the end I always eventually feel trapped and must do something with my surroundings.  Because I struggle living amongst people and in society at times, I can require more support or help, and it can be hard keeping a consistent income. Unfortunately, that means falling into the comfortable, low poverty or severely poverty-stricken bracket of life.  This seems to be the cycle of my life that I am trying and hoping to change.  That just creates nothing but hassles within my day to day living.

I love to study and have found with the university I attend, working from home as a self-directed learner can have its benefits and pitfalls.  I can’t seem to be among people all the time so finding work or career choice isn’t the easiest, but the university I am with seems to be a brilliantly insightful resource, opening doors and suggesting things I never thought of or even knew were possible.  Maybe finding a career that suits my disabilities and abilities might not end up being as challenging as I had once thought

I’m learning some people just want a rant and do not want to delve into too much depth for whatever reason.  Sometimes I can be the worst person to be around if this is the case, because I’m a problem fixer, relationships sometimes want to be ignorant to problems, but not all the time and that is where I come in to use.  What I am trying to Learn is to not give so much of myself away when it has a somewhat crippling effect on myself.  This is proving challenging, but one I am getting better at and hope to continue to do so in the future

I’ve learnt that mental health and wellbeing is so tangled that even the people hired to help, forget, lose track or become so over worked and distracted they become a part of the problem, instead of a solution.  It went so bad from here onwards, I suppose as I share the story will be unravelled, and I truly am taking others on this journey with me, not only to help myself but to change the way it works.  How we portray words determines how we react.  I am a coward, it’s that thought that brings out the fighter and why I am voicing my words. (demand versus avoidance)